Julian joins All-Party Group on Motor Neurone Disease
October 29, 2020
Following the incredibly moving BBC documentary Rob Burrow: My Year With MND, Julian has joined the All Party Parliamentary Group on Motor Neurone Disease. The purpose of the group is to increase awareness and understanding of MND amongst parliamentarians and to campaign for better access to high quality services for people affected by MND.
For those who have not watched the documentary, it is still available on iPlayer (https://www.bbc.co.uk/…/m00…/rob-burrow-my-year-with-mnd) and Julian would like to encourage everyone to watch it.
Speaking after watching the documentary, Julian said: “I have fond memories of watching Rob play for the Leeds Rhinos at Headingley and it is incredible to watch him face his diagnosis with the same bravery and determination he displayed on the pitch.
My thoughts remain with Rob and the 5,000 adults in the UK affected by MND at any one time. Six more people will be diagnosed today. Rob, the APPG on MND and the Motor Neurone Disease Association continue to raise awareness of this disease in the hope that continued research will one day lead to a cure but until then patients and families must have access to sufficient support.
Any constituents who have been diagnosed with MND can contact me and I will liaise with the Vale of York CCG to ensure you have access to available treatments.”
The Motor Neurone Disease Association can be contacted on 0808 802 6202 and further information can be found here: https://www.mndassociation.org/support-and-information/
