Julian celebrates the work of the York Adult Cystic Fibrosis Unit
March 7, 2014
Last week Julian was delighted to meet with Dr Rebecca Thomas and her colleagues at the York Adult Cystic Fibrosis Unit in York Hospital to celebrate their work with the Cystic Fibrosis Trust.
During his time at the Unit Julian heard about major developments in the last few years which have had a positive impact on the lives of people living locally with cystic fibrosis, as well as learning about the challenges of providing specialised care. Julian also pledged to support the No Party campaign which aims to highlight the shocking fact that so many cystic fibrosis patients never get the opportunity to celebrate their 50th birthday
A rise in the adult population across North Yorkshire has meant that there was a growing need for the development of a specialised cystic fibrosis service in York. In recent years the Cystic Fibrosis Unit has benefited from two newly refurbished rooms with en-suite facilities and a treatment room. These improved facilities are crucial due to the risk of potentially fatal infections being passed from one patient to another. For this reason, all inpatient and outpatient activities are routinely segregated. The majority of people with cystic fibrosis are advised to carry this segregation into their daily lives, avoiding all contact with other people with the same disease.
As well as new facilities being available, people with cystic fibrosis need to be cared for by a multidisciplinary team. The complexity of the disease means that patients at York can access specialist doctors, nurses, physiotherapists, psychologists, dietitians and pharmacists who are important in helping someone with cystic fibrosis to manage symptoms and maintain their health.
Following his visit, Julian said: I was very pleased to visit the Unit and meet with the staff there who do a wonderful job supporting all of their patients. In particular, I am happy to lend my support to the ‘No Party’ campaign by joining thousands of people who are uniting to help beat cystic fibrosis.
For further information about the York Cystic Fibrosis unit please visit www.cfyork.org.uk To find further information or support on cystic fibrosis please visit www.cysticfibrosis.org.uk To lend your support to the No Party campaign, please visit www.noparty.cysticfibrosis.org.uk To find out more about the York CF Unit please visit www.cfyork.org.uk